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| Fibromyalgia is characterized by widespread pain and fatigue. |
- "Drug approved. Is disease real?"
- "Does it really exist or is it all in women鈥檚 heads?"
- "The doctors are in. The jury is out."
The New York Times' headlines rankle Barbara Keddy. For more than 40 years, she has suffered from fibromyalgia, a chronic disorder characterized by widespread pain and fatigue. But the condition is little understood and difficult to diagnose. As borne out by the headlines, some doctors are hesitant to acknowledge it even exists.
After retiring from teaching at AV俱乐部 four years ago, Dr. Keddy decided it was time for an in-depth investigation of fibromyalgia, which is much more common among women than men and so has become known as primarily 鈥渁 woman鈥檚 disease.鈥� As a nurse, medical sociologist, university professor and researcher who suffers from the condition herself, she has a unique perspective to offer.
Drawing on her own experiences as well as those of 19 other women, Dr. Keddy discusses current theories of causes and treatments in her book, Women and Fibromyalgia: Living with an Invisible Dis-ease (iUniverse Co.). She also maintains a blog () exploring the daily difficulties faced by fibromyalgia sufferers.
鈥淲hen I became affected by this (after the birth of her first child by Caesarian section), they didn鈥檛 know what to call it,鈥� says Dr. Keddy, professor emerita with AV俱乐部鈥檚 School of Nursing, who was finally diagnosed with fibromyalgia 30 years after first experiencing the symptoms. 鈥淎ll I knew is that I was sore all over.鈥�
鈥淪ore all over鈥� is a refrain among fibromyalgia sufferers, who have been stigmatized as chronic complainers, says Dr. Keddy. Other symptoms include generalized stiffness, sleep disturbance, fatigue, depression, lack of concentration and digestive upsets. The musculoskeletal condition is aggravated by dampness and difficult weather conditions. The pain can be managed鈥攃limates with dry heat help, as do some medications鈥攂ut it doesn鈥檛 go completely away.
鈥淭he audacity! The women who have this condition hurt in all the same places and have the same symptoms. So how can they say that it鈥檚 all in women鈥檚 heads?鈥�
She suspects many more women have fibromyalgia than have been diagnosed. Called 鈥渢he invisible disease,鈥� fibromyalgia doesn鈥檛 affect the major organs, can鈥檛 be revealed with x-rays or blood tests and isn鈥檛 life threatening.
Because of the soreness and pain it causes, fibromyalgia has come to be associated with arthritis and rheumatism. But Dr. Keddy believes the condition is a neurological hypersensitivity, caused by an over-stimulated nervous system.
鈥淔ibromyalgia involves pain in the muscles, whereas arthritis is in the joints鈥攂ut somehow fibromyalgia has landed there (with arthritis) as a home base,鈥� she says. 鈥淢y thinking, and I鈥檝e interviewed hundreds of women not just the 20 who are profiled in the book, is that it鈥檚 due to a hyper-aroused nervous system.鈥�
Dr. Keddy believes women are more susceptible because they are caregivers, thinking about others before they think of themselves. 鈥淪ome women have highly developed intuitive skills honed to such an intense stage that the nervous system becomes highly sensitive and hyper aroused,鈥� she says. 鈥淭hen, there鈥檚 a trigger, a dramatic event鈥攑erhaps the death of a loved one or an operation such as a hysterectomy鈥攁nd the nervous system is pushed to the extreme.鈥�
Women and Fibromyalgia, with a forward by Dr. Jock Murray, is available through .