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 Playing Go Fish. (Danny Abriel Photos) |
It starts out like any other table conversation: gossip about the day to come, last night鈥檚 hockey game and so forth. It soon shifts to a discussion about the various pieces of folk art scattered around the table: a paper mach茅 turkey, a seaside painting and a sculpture of Ronald Reagan. The mood is jovial; laughs and one-liners abound.
But to an observer, the conversation feels a bit like jigsaw puzzle: a piece here, a fragment there. The five patients seated in the boardroom of AV俱乐部鈥檚 School of Human Communication Disorders vary wildly in their abilities to share thoughts with one another. Some seem to join the conversation with relative ease but struggle to understand its flow. Others speak only with indiscriminate sounds, relying on gestures to communicate.
Despite their differences, they all share the challenge of communication, explains Linda Wozniak, director of AV俱乐部鈥檚 Intensive Residential Aphasia Communication Therapy program (InteRACT, for short). 鈥淚t really brings them together,鈥� she says. 鈥淭hey bond during the program because they know how hard it is to get their point across.鈥�
This group session is a daily part of the InteRACT program, which since 2002 has attracted aphasia patients from around the world to Halifax each summer. They come for an intensive four-and-a-half week immersion experience with two unique features: patients live in residence and are accompanied by a communication partner from home, a family member or friend who will continue to work with them when they leave Halifax.
鈥淚t鈥檚 not just about what goes on in the therapy room, but making sure that they can communicate when they鈥檙e outside of it,鈥� says Ms. Wozniak. 鈥淲e want to get people to try new things or learn to do old activities that they used to do before they started their battle with aphasia.鈥�
Though it鈥檚 often the consequence of a stroke, aphasia is not, as you might think, an impairment in the physical function of speech. Instead, it鈥檚 an impediment in a person鈥檚 ability to produce or comprehend language itself. The individual therapy sessions and group activities 鈥� which include excursions to the shopping mall and the library 鈥� are all aimed at retraining the brain to reconnect thought with speech. Ms. Wozniak says that it helps to imagine overcoming aphasia as akin to learning a second language: 鈥淚t鈥檚 like learning the words over again. It鈥檚 like your vocabulary has been erased.鈥�
If that鈥檚 the case, then at first glance one might consider the masters students who work with the patients to be translators. Yet their role in the InteRACT program is so much more. They are crucial to the program鈥檚 success, leading the group activities and facilitating many of the personal therapy sessions. And by working with multiple patients throughout the program, they gain valuable experience in customizing the care to the client.
鈥淵ou really have to learn to adapt your therapy, because every patient with aphasia is very different,鈥� says Shae Chapman, who like most of the students is working towards her master鈥檚 degree in speech language pathology. 鈥淭his is likely one of the only chances I鈥檒l get to work in such an intensive program. If I鈥檓 able to see the ideal therapy situation here, hopefully I can take what I learn to another clinical setting.鈥�
On this particular day, student Courtney Digdon leads a group session using folk art as a tool to encourage communication. Each patient picks out their favourite piece of folk art and answers questions about it 鈥� why they chose it, how much they鈥檇 pay for it and what they鈥檇 name it. They also read biographies on the artists and answer questions.
鈥淚t鈥檚 very rewarding,鈥� says Ms. Digdon of the opportunity to help aphasia patients overcome their disorders. 鈥淚t鈥檚 something that鈥檚 so important to everyone 鈥� we all want to communicate. When you can鈥檛 communicate, or you can鈥檛 communicate in the way you want to, it can be devastating.鈥�
It was completely out of the blue; in an instant our lives changed.鈥�
One gets the sense that Nancy Maloney鈥檚 story is an all-too-common one, in spite of the somewhat unique circumstances under which it began. Her husband, Bruce Landon, lacked any of the major risk factors for stroke, but a spontaneous tear of an artery in his brain formed a clot that led to a stroke, impairing both his motor skills and his ability to communicate.
Before entering the InteRACT program, he spent eight months bouncing around from one hospital to another in British Columbia, never finding the right combination of intensive rehabilitation and personal attention. Ms. Maloney hopes the InteRACT program will produce some gains, although she acknowledges there鈥檚 still a long path to recovery.
鈥淏ruce still gets discouraged because he wants to be able to do everything he did before,鈥� she explains. 鈥淏ut we鈥檙e grateful for any improvement. We know recovery happens over years with appropriate rehabilitation services.鈥�
She also wishes this sort of care was available through the public medical system. As it stands, the InteRACT program is private and costs $16,500. Ms. Wozniak explains that the program operates entirely under a cost-recovery system, and its organizers are constantly searching for new sources of funding to help keep costs low for patients and their families.
For some, the investment is more than worth it: Virginia native Perry Tsacoumis made his third trip back this year. At times when talking, he stops to count things out with his hands; numbers still aren鈥檛 easy for him. But while his speech is slow and stuttering, it鈥檚 also crystal clear and comprehensible 鈥� significant progress from two years ago, when he fell ill on Christmas Day.
Mr. Tsacoumis jokes that the student assistants are 鈥渢ough 鈥� good tough鈥� and says his favourite part of the program is working with others going through the same struggles: 鈥淭alking 鈥� interacting 鈥� sharing different opinions about different stuff.鈥� He credits that sort of interaction and therapy with the gains he鈥檚 made: 鈥淲onderful. Wonderful improvement here.鈥�
听It鈥檚 the sort of improvement Chip Hilborn, also from Virginia, hopes for his wife Lynda. Her memory, motion and speech have all suffered after a bout of encephalitis just over a year ago and recovery, to this point, has been slow and hard.
鈥淭he hopes are always greater than the realistic hopes,鈥� Mr. Hilborn concedes, and his tone suggests he鈥檚 keeping his expectations grounded. 鈥淏ut I hope that we can spark some memories and that she can regain more of her ability to communicate. Maybe she鈥檚 just at the right point in her recovery but in the last three weeks, my wife has made more progress than in the past eight months.鈥�
听
Go fish,鈥� says Steve Neighbors, speaking across the table in the direction of Al Lugli. Mr. Lugli鈥檚 verbal communication skills are limited, but 鈥� ever the jokester 鈥� he responds with a comical glare. He dips into the pile to select another card to add to his hand, laid out on an upside-down brush for easy access.
The card game isn鈥檛 just for kicks. It鈥檚 part of a process that Ms. Wozniak describes as 鈥渃onstraint theory鈥� 鈥� restricting a stronger skill to build strength in a weaker one. The patients can鈥檛 use gestures to describe the photos on the cards, and are forced to speak to one another to ask for cards and respond to requests. It鈥檚 also a chance for the group to participate in something familiar and help build their confidence back.
鈥淚t鈥檚 so easy for them to retreat into themselves in their condition, so confidence is extremely important,鈥� says Ms.Wozniak. 鈥淭he majority of patients we see gain back some of that self-confidence in their communication skills, and that alone can make a huge difference in their everyday life.鈥�
There鈥檚 not just confidence on display as the players hide their cards from one another behind binders and notebooks 鈥� there鈥檚 bravado, trash talking and all the other hallmarks of a classic card showdown. The game may take longer than normal as the participants try to find the words they鈥檙e seeking, but there鈥檚 a normalcy to it that鈥檚 heartening.
Like each patient鈥檚 path to recovery, the game never really ends; it just picks up again the next day. Tomorrow there will be more one-on-one therapy, another group session and 鈥� for the patients and their families alike 鈥� another day hoping for breakthroughs big and small.