AV俱乐部

What It鈥檚 Like is a series launching for AV俱乐部 Accessibility Week, one that provides members of the Dal community with an opportunity to share their first-person perspective on living with a disability. People are welcome to share with their name or anonymously.

Submitted by Anonymous:

I have suffered from chronic migraines my entire life 鈥� my earliest memory (age 3?) is having a migraine attack. For people who鈥檝e never had chronic headaches or migraines before, they are usually dismissive when I say that I have a migraine. 鈥淚t鈥檚 just a headache.鈥� Except that it isn鈥檛 just a headache. It鈥檚 a headache that doesn鈥檛 respond to over the counter pain relief that you might turn to if you had a hangover-induced headache or were sleep deprived. It鈥檚 a headache that means if I stand up, I feel so dizzy that I need to sit or lie down. It鈥檚 a headache that means if I lie down, I feel so nauseated I might throw up. Add to these symptoms a general sensitivity to light and sound, you can imagine that when a migraine attacks I am completely unable to perform my work or participate in the daily activities of life.

I can鈥檛 count the number of work days or personal events (the first ~ 10 of my own birthday parties in life, holidays, celebrations e.g. high school & under graduations) that I鈥檝e missed because I was having a migraine attack. I was genuinely concerned I would miss my own wedding due to a migraine (thankfully, I didn鈥檛). There is medication for my particular kind of migraines but it is not preventative (it only treats symptoms) and it doesn鈥檛 always work. And, it also causes rebound migraines, so it can make a typical migraine attack go from 1-2 days to lasting 5 days. I carry these magic meds with me everywhere, just in case. Insurance companies consider the cause of my migraines (hormones) a 鈥減re-existing condition鈥� and therefore my pre-existing expensive (1-2K per year) prescriptions are not covered. I am grateful to the coverage that I now have from AV俱乐部 as my employer.

Tell us a little about yourself and your role here at Dal.听

I have a PhD from the natural sciences and until recently was a research scientist. At Dal I serve in an administrative role that utilizes my training as a researcher.

What do you wish people knew about your disability?

As indicated above, I wish people knew how debilitating a migraine is and also how unreliable the available medication is! When I have a migraine, the only thing I can do is close my eyes and find a dark, quiet space 鈥� I cannot simply work through it, as many friends and colleagues have suggested to me over the years. I have no control over their timing (no prevention) and I can鈥檛 always stop them once they鈥檝e started. Even so, the side effects of the prescribed medication (when it works) means I am disoriented, sometimes shaky, and simply not myself. These are a few of the contributing reasons why I left research, where my altered state presented a real hazard to myself and possibly others in the research environment.

What accessibility changes would have the biggest impact on your experience here at Dal?

For my own disability, flexible work hours have been critical to my success. I was fortunate to have a highly flexible undergraduate environment where I could reschedule lab courses if necessary, meaning I didn鈥檛 miss mandatory laboratory work when I had a migraine. The format of graduate studies in the physical sciences also meant that I had considerable flexibility during my PhD, and similarly during my research as a post-doctoral research fellow. My choice of current work was made, in part, because of the flexibility it offered. AV俱乐部 should continue to encourage flexible work arrangements such as remote work, as I think this a major retention as well as recruitment tool for staff. I would like to also suggest that the same considerations be extended to undergraduates. Facilitating 鈥渕ake-up鈥� sessions for mandatory participation in course work (labs, tutorials) shouldn鈥檛 be as difficult as it appears to be at AV俱乐部 - to be clear though, I did not do my undergraduate at Dal. I wish every student could have the same support that I had in my undergraduate as it made all the difference to not only my completing the degree but my being named as the top graduating student at both the department and faculty (Science) levels at that institution.

-- End of submission --

Interested in sharing your own experiences?

We'd love to hear from you. Please take a look at our questions below and how to submit them. Please note that you can choose to remain anonymous if you wish. (Note: names will be visible to individuals receiving submissions by email).

Our questions for you:
听

• Tell us a little about yourself and your role here at Dal. (Note: If remaining anonymous, this prompt can be skipped 鈥� or, simply share as much detail as you feel comfortable doing).
  
  
• What do you wish people knew about your disability?
  
  
• What accessibility changes would have the biggest impact on your experience here at Dal?

If you鈥檙e interested in sharing your experiences navigating university life with a visible or invisible disability, please contact us at听today@dal.ca听with answers to the above questions or to set up a short interview.